During the weekend 8-10 November 2019 HAE Scandinavia conducted its third Scandinavian conference – this time in Oslo, Norway. Around 125 participants from Denmark, Norway and Sweden as well as four patients from Finland attended this very interesting meeting. The conference focus was on changing the paradigm for treating HAE.
HAE Scandinavia presented the outcome of their most recent healthcare and socio-economic study that clearly outlines the benefits of and support the recent introduction of modern prophylactic therapies. The study was presented by Christian Jervelund from Copenhagen Economics, the economic firm who also assisted HAE Scandinavia in completing their research. A copy of the report will soon become available – initially in English – at www.haescan.org.
Professor Markus Magerl from Berlin, Germany presented the effectiveness and the prospect of living a symptom-free life with the new prophylactic therapies – based on the clinical experience from
Charité in Berlin. Besides the aim to achieve access to themodernprophylactictherapies,theconferencealso focused on Quality of Life. Dr. Robert Brudevold from Ålesund, Norway presented his findings. Another focus point was the optimized treatment of HAE patients, where Dr. Olav Gramstad presented the experience from Oslo, Norway. Professor Anette Bygum from Odense University Hospital, Denmark spoke about the patient in the community, and how to treat children with HAE. Nanna Maria Boysen from Denmark spoke as a representative of the HAEi Youngsters community and informed the audience on the work being done by the youngsters and the benefits of being part of this organization. Furthermore, HAE Scandinavia had motivational speaker Mark Anthony from Denmark speaking about the importance of being motivated and giving the audience tools to work with their personal motivation during changes.
During its General Assembly, HAE Scandinavia could also welcome Cecile Grahn from Sweden as a new member of the board